Open MS BioScreen for Clinical or Research Use
Tracking cohorts of Open MS BioScreen data.
Please
contact us
if you are a clinician or researcher and would like to keep track of a patient cohort.
What data can be collected?
Profile Information
-
Date of Birth
(MM/YYYY)
-
Age of onset
(age)
-
Gender
(Female, Male, Transgender, Non-binary, Prefer not to say)
-
MS Type
(Clinically Isolated Syndrome, Primary Progressive, Relapsing Remitting, Secondary Progressive, I don't know, Prefer not to say)
-
City
(string)
-
Country
(string)
-
Education
(Completed 8th grade, Some high school, Finished high school or GED, Some college, Finished 4-year college, Some advanced degree, Obtained advanced degree)
-
Employment
(Unemployed, On disability, Working full time, Working part time, Housemaker, Student, Retired, Other)
-
Race
(White, Black or African American, American Indian or Alaska Native, Asian, Hispanic or Latino, Native Hawaiian or other Pacific Islander, More than 1, Prefer not to answer, Other, I don't know)
-
Smoking History
(Current, Former, Never, I don't know)
-
Spinal Tap Results - Oligoclonal Bands
(Present (on at least one tap), Never present, Don't know)
-
Spinal Tap Results - IgG Index
(Elevated (on at least one tap), Normal, Don't know)
MS Measurements
-
EDSS
-
Date
(MM/YYYY)
-
Score
(float)
-
prEDSS
-
Date (MM/YYYY)
-
Domain scores (integer)
-
Total score (integer)
-
Relapses
-
Medications
-
Name
(Doxycycline, Teriflunomide, Interferon, Alemtuzumab, Mycophenolate Mofetil, Cyclosporine, Cyclophosphamide, Dexamethasone, MBP8298, Immune Globulin Intravenous, Fingolimod, Glatiramer-Acetate, Azathioprine, Cladribine, Minocycline Hydrochloride, Neurovax, Mitoxantrone, Pegylated Interferon Beta, Methylprednisolone Sodium Succinate, Dimethyl Fumarate, Methotrexate, Rituximab, Ocrelizumab, Natalizumab, Vitamin D, Other)
-
Start Date
(MM/YYYY)
-
Current
(boolean)
-
End Date
(MM/YYYY)
-
Step Count
-
Date (MM/YYYY)
-
Step Count (integer)
